Pediatric Renovascular Hypertension Symposium

Ann Arbor, MI

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Program Agenda

Monday, September 19, 2022

Rackham Graduate Building
4th Floor – Use the West Elevator
915 E. Washington Street
Ann Arbor, MI 48109

Welcome and Introduction

Scientific Session 1 – Pediatric Renovascular Hypertension – Translational Science

  1. (S Ganesh) What have we learned during the last 3 years – a review of recent gene discovery
  2. (D Coleman) Adult v. Pediatric FMD
  3. Syndromic pRVH – The role for precision medicine
    • (genotypic treatment challenges – case-based discussion/panel)
    • Panelists:  E. Ames, K Meyers, M Ferguson, AM Cahill, R Parekh, J Flynn, W. Ohman, J Stanley, K Tullus
      • NF-1
      • Williams Syndrome
      • Turners
      • Alagille

Scientific Session 2 – Pediatric Renovascular Hypertension – Associated / Concurrent Pathology

  1. (M Riebschleger) Inflammatory Arteriopathy
    1. Debate (J Stanley and K Tullus) – Inflammatory arteritides v. ‘non-inflammatory’ disease
  2. (C. Amlie-LeFond) Neurovascular Disease – perioperative considerations and/or revascularization options for Moya-Moya
  3. (J Stojanovic) Spectrum of cardiac involvement and outcomes in pRVH

Keynote Address from Dr. Jim Stanley – Pediatric Renovascular Hypertension: Pathogenesis, Pathophysiology, and Its Relevance

Scientific Session 3 – Pediatric Renovascular Hypertension – Novel Imaging Techniques

  1. (R Krishnamurthy) Cross-sectional Considerations (ie: MDCT/3D imaging)
  2. (J. Chow and S. Kurogil) Innovative MR protocols (ie: GFR/differential function and compare with renin studies)
  3. (J Amaral) Angiography adjuncts – contrast, IVUS, etc
  4. (A Figueroa) Computational updates

Scientific Session 4 – ‘The Solution Room’:  Revascularization Options for Pediatric Renovascular Hypertension
(Panelists: R Parekh, J Eliason, D Stein, Z Modi, W Ohman, J Flynn, AM Cahill, D Coleman, J Amaral, J Samuels, A Cuenca)

  1. Midaortic Syndrome      
    • Medical Management
    • Endovascular Options
    • Aortic bypass / conventional revascularization
    • Novel approaches for surgical treatment
  2. Severe infantile pRVH
    • Medical
    • Surgical
    • Endovascular
  3. Deep disease
    • Medical Therapy
    • Endovascular therapy (ie: embolization)
    • Surgical (ie: Partial nephrectomy)

4:45        Closing Comments

Tuesday, September 20, 2022

Rackham Graduate Building
4th Floor – Use the West Elevator
915 E. Washington Street
Ann Arbor, MI 48109

  • Welcome and PCOR 101 – an overview of the pRVH (a day in review) – F Ceesay and D Coleman
  • SEED Method – Emily Zimmerman
  • Results of VRN Survey – D Coleman
  • ’Nothing about me, without me’ – QOL in patients who have undergone surgery – J Stojanovic
  • Improving QOL, educational and health outcomes in children with chronic medical conditions – L. Krimball
  • Multidisciplinary Approach to the pRVH Patient Care Team
    (Panelists: M Ferguson, W Ohman, R Parekh, J Stojanovic, J Amaral, AM Cahill, J Flynn, J Samuels, Grubb Family, Van Natta Family, S Young, R Clayton, and M Butler)
  • Stakeholder Engagement Panel
    (Panelists: R Anderson, T Monkaba, P Mace, E Zimmerman, Goodwin Family, Zangara Family, and Roomberg Family)
  • Working Groups

Wednesday, September 21, 2022

  • Big House Stadium Tour
  • Patient and Family Networking and Presentations
  • Q&A session with Clinical Team