Pediatric Renovascular Hypertension Symposium

Ann Arbor, MI

OVERVIEW

Please join colleagues and experts November 11-12 at the University of Michigan in Ann Arbor for this collaborative and informative conference which will bring multi-disciplinary experts together to identify best practices in the clinical management of these unique pediatric patients.

Pediatric renovascular hypertension secondary to renal artery stenosis and abdominal aortic coarctation is exceedingly rare and risks significant morbidity and mortality. The pathophysiology and etiology of both remain poorly defined. Moreover, the low frequency of this disease limits existing data to institutional series and anecdotal case reports.

Building upon our first Symposium that took place in 2019, we will once again bring together distinguished speakers from leading institutions
as well as patients and their families. Together we will highlight best practices in patient care, recent discovery, and ongoing research via collaborative, interactive seminars and group discussions. This 3-day Symposium will dedicate individual days to Scientific presentations, Patient-Centered Outcomes Research, and Patient and Family networking. We encourage you to join us for this collaborative and informative symposium.

The conference is organized by a committee of physicians in the United States, Canada and the UK.   It is sponsored by the University of Michigan’s Taubman Institute, which was established in 2007 to support the work of clinician-scientists.

REGISTRATION

Admission to the conference is free for patient/family members and $150 for clinicians and researchers. We will also try to share presentations virtually and that is free, link will be sent if the person registers for Virtual Attendance. Breakfast, lunch and coffee breaks will be served. Please register at our Eventbrite site to reserve a space and receive periodic conference updates.

Event Registration

All conference sessions will take place at the U-M Kellogg Eye Center, 1000 Wall Street, Ann Arbor, Michigan, 48105. 

PROGRAM

Monday, September 19, 2022

  • Scientific Session 1 – Pediatric Renovascular Hypertension – Translational Science
  • Scientific Session 2 – Pediatric Renovascular Hypertension – Associated Pathology
  • Scientific Session 3 – Pediatric Renovascular Hypertension – Novel Imaging Techniques
  • Scientific Session 4 – ‘The Solution Room’: Treatment Options for Pediatric Renovascular Hypertension

Tuesday, September 20, 2022

  • Welcome and PCOR/PCORI and pRVH PCOR Collaborative Overview
  • SEED Method
  • VRN Survey Updates
  • Improving QOL, educational and health outcomes in children with chronic medical conditions
  • Multidisciplinary Approach to the pRVH Patient Care Team
  • Stakeholder Engagement Panel
  • Working Groups
  • Family Networking

Wednesday, September 21, 2022

  • Big House Stadium Tour
  • Patient and Family Networking and Presentations
  • Q&A session with Clinical Team
Program Agenda

SPEAKERS

Anne Marie Cahill, MBBch

Kyung J. Cho, MD, FACR, FSIR

Dawn M. Coleman, MD

Harry Dietz III, MD

Jonathan R. Dillman, MD, MSc

Jonathan Eliason, MD

Michael Ferguson, MD

C. Alberto Figueroa, PhD

Joseph Flynn, MD, MS, FAAP

Santhi K. Ganesh, MD

David H. Gutmann, MD, PhD, FAAN

David Kershaw, MD

Heung Bae Kim, MD

Heung Bae Kim, MD

Marc B. Lande, MD, MPH

Armando J. Lorenzo, MD MSc FRCSC FAAP FACS

Lucas Mertens, MD, PhD

Kevin E. Meyers, MD

Mahendra Moharir MD, MSc, FRACP

Hansel Otero, MD

Rulan S. Parekh MD, MS, FRCP(C), FASN

John M. Park MD

Premal A Patel, BSc, MBBS, MRCS, FRCR

Diego Porras, MD

Michael Rivkin, MD

Wilhelm Sandmann, MD, PhD

James C. Stanely, MD

Kjell Tullus, MD, PhD, FRCPCH

Daan H. H. M. Viering, MD, MSc

Jillian Warejko, MD

Speaker Bios

TRAVEL INFORMATION

AIRPORT

Ann Arbor is about half an hour by car from Detroit Metropolitan Airport (DTW)

TRAIN

Ann Arbor’s Amtrak station is half a mile from the U-M campus

GROUND TRANSPORTATION

For reserved ground transportation from Detroit Metropolitan Airport to the hotel, we suggest Golden Limousine or Metro Cars.

HOTEL

A block of rooms have been reserved at The Graduate, within walking distance of the University of Michigan main campus and medical center. (Mention PRH symposium when making your reservation. A shuttle will be provided to the conference center each morning and evening).

ORGANIZERS

Co-Chairs:

  • Dawn Coleman, MD (University of Michigan)
  • Rulan Parekh, MD, MS, FRCPC (The Hospital for Sick Children)

Planning Committee:

  • Joao Amaral, MD (The Hospital for Sick Children)
  • Michael Ferguson, MD (Boston Children’s Hospital)
  • Santhi Ganesh, MD (University of Michigan)
  • Kevin Meyers, MD, MBBCh (Children’s Hospital of Philadelphia)
  • Kjell Tullus, MD, PhD, FRCPCH (Great Ormond Street Hospital for Children

SPONSORS

This symposium is partially funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award (19976-UM) and the Taubman Institute.